Survey Finds Only 6% of RLS Patients Say Drugs Control Symptoms

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Survey Finds Only 6% of RLS Patients Say Drugs Control Symptoms

In 2013, the Willis-Ekbom Disease (WED) Foundation conducted a “Patient Odyssey Survey” with 3,000 members of the WED foundation and their partners/spouses. The survey was designed to look at how RLS impacts daily living from the perspective of both RLS sufferers and their partners.


Of those surveyed, 68% felt that physicians needed a better understanding of RLS; 42% agreed that their current healthcare provider did not understand their disease; and 93% wished more effective medications were available, according to a press release from XenoPort, Inc.

The study noted that out of the 95% of the patient survey respondents who reported that they were or had taken prescription medications, only 6% of patients believed that their symptoms were completely controlled by their current medications. A third of those had switched three or more times since they were diagnosed with RLS, and more than 50% reported that nothing seemed to work to control their symptoms.

Interestingly, more than two-thirds of the patients reported the side effect augmentation, or a worsening of RLS symptoms occurring after taking a medication to treat RLS.

This Odyssey Survey illuminates the need for further study and investigation into the treatment of RLS, focusing on better treatments as well as the education of the physicians who treat individuals with Restless Legs Syndrome.